Managing Epilepsy Well Network Logo Managing Epilepsy Well Home Page
MEW Network At a Glance

Centers for Disease Control and Prevention (CDC) Managing Epilepsy Well (MEW) Network

MEW Network At a Glance PDF

Managing Epilepsy Well: Putting Collective Wisdom to Work for People with Epilepsy (CDC PRC Booklet--4.6MB)

MEW PRCs (2014-5)

The mission of the Managing Epilepsy Well Network (MEW) is to advance the science related to epilepsy self-management by facilitating and implementing research, conducting research in collaboration with network members and community stakeholders, and broadly disseminating research findings. 

Collaborating prevention research centers:

Evidence-based programs

WebEase: Epilepsy Awareness, Support and EducationWebEase (Web Epilepsy Awareness Support and Education) is an online self-management program to improve medication adherence, stress and sleep management

DiIorio, et al. (2009). Health Education Research, 24(2), 185-197; DiIorio, et al. (2009) Preventing Chronic Disease, 6(1), A2; DiIorio, et al (2011). Epilepsy Behav,22(3): 469-474

Using Practice and Learning to Increase Favorable ThoughtsUPLIFT (Using Practice and Learning to Increase Favorable Thoughts) for

Epilepsy is an online and telephone intervention using cognitive behavioral therapy and mindfulness to treat depression in people with epilepsy

Thompson, et al.(2010). Epilepsy & Behavior, Volume 19(3): 247-254.; Walker et al.(2010). Epilepsy & Behavior,Volume 19(3): 239-246.

PEARLSPEARLS (Program to Encourage Active Rewarding Lives) is a home-based depression treatment intervention for  adults with epilepsy and co-morbid depression

Ciechanowski  et al. (2010), Epilepsy & Behavior, Volume 19(3): 225-231

HOBSCOTCH LogoHOBSCOTCH (Home Based Self-management and Cognitive Training Changes Lives): Dissemination of a promising community-based self-management program for people with epilepsy and cognitive dysfunction

Caller et al., Epilepsy Behav, 2015, 44, 192-194; Caller et al., Epilepsy Behav, 2015, in press

PACES in EpilepsyPACES (Program for Active Consumer Engagement in Epilepsy Self-Management): Adaptation of the PACES program for phone-delivery to veterans and adults with epilepsy

Fraser et al. Epilepsia, 2015, 56 (8), 1264-74

 

Programs under evaluation

Completed multi-site research

Preventing Depression in People with Epilepsy: An Extension of Project UPLIFT (Funded through the National Center for Minority Health and Health Disparities, NIH Challenge Grant Award)

Completed research projects

Contributing to Managing Epilepsy Well: A comprehensive review of the experiences and effects of self-management interventions for epilepsy.
Clark, et al. (2010) Epilepsy & Behavior,Volume 19(3): 255-263)

Socioeconomic differences in epilepsy self-management and its impact on treatment adherence, healthcare use, and health outcomes
Begley et al. (2010). Epilepsy & Behavior,Volume 19(3): 232-238)

Developing Community-Based Self-Management Programs for Adults with Epilepsy
Fraser R et al. (2011). Epilepsy & Behavior, Volume 20, Issue 2, 291-8.

  • 40 peer-reviewed publications available here.
  • Tools, eTools & training

    Community of practice workgroups

    • Self-Management in Pediatric Epilepsy (2013-present)
    • MEW Ontology-driven Data Portal (2013-2014)
    • Self-Management Measurement Tool Development (2010-2015)
    • Dissemination, Implementation and Sustainability (2011-2014)
    • eHealth Tools and Epilepsy Self-Management (2011-2013)
    • Epilepsy and Stigma (2010)
    • MEW Network Article (2009-2010)

    For an overview on the MEW Network, please read the following resources:

    DiIorio C, Bamps Y, Edwards AL, Escoffery C, Thompson NJ, Begley CE, Shegog R, Clark NM, Selwa L, Stoll S, Fraser RT, Ciechanowski P, Johnson EK, Kobau R, Price PH. (2010). The Prevention Research Centers' Managing Epilepsy Well Network. Epilepsy & Behavior, Volume 19(3): 218-224.
    doi:10.1016/j.yebeh.2010.07.02
    View PubMed Abstract

     

    Contact information:

    Barbara Jobst, MD, Dr. med, FAAN
    Principal Investigator
    Dartmouth-Hitchcock Epilepsy Center:
    Barbara.C.Jobst
    @Hitchcock.org

    Nancy J. Thompson, PhD, MPH
    Co-Investigator 
    Emory University:
    nthomps@emory.edu

    Rosemarie Kobau, MPH, MAPP,
    Team Lead, Epilepsy Program
    Centers of Disease Control and Prevention, NCCDPHP, Division of Population Health: rmk4@cdc.gov

    The MEW is funded by the CDC and is supported by special interest project SIP 14-006 and SIP 14-007. Cooperative Agreement Numbers: 1U48DP005002 (Arizona), 1U48DP005018 (Geisel School of Medicine at Dartmouth), 1U48DP005010 (Illinois), 1U48DP005042 (Morehouse), U48DP005008 (NYU).

     

    MEW Network At a Glance PDF

    Managing Epilepsy Well: Putting Collective Wisdom to Work for People with Epilepsy (File Size: 4.6 MB)

     

    MEW Network